MSF Field Research > 1 Published Research and Commentary > TB > Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients?

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Title: Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients?
Authors: Zachariah, R
Harries, A D
Srinath, S
Ram, S
Viney, K
Singogo, E
Lal, P
Mendoza-Ticona, A
Sreenivas, A
Aung, N W
Sharath, B N
Kanyerere, H
van Soelen, N
Kirui, N
Ali, E
Hinderaker, S G
Bissell, K
Enarson, D A
Edginton, M E
Affiliation: Medical Department, Médecins Sans Frontières, Operational Centre Brussels, MSF-Luxembourg, Luxembourg.
Citation: Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? 2012, 16 (6):714-7 Int. J. Tuberc. Lung Dis.
Journal: The International Journal of Tuberculosis and Lung Disease : the official journal of the International Union against Tuberculosis and Lung Disease
Issue Date: Jun-2012
URI: http://hdl.handle.net/10144/227595
DOI: 10.5588/ijtld.11.0635
PubMed ID: 22613683
Abstract: The words 'defaulter', 'suspect' and 'control' have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side-that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words 'defaulter', 'suspect' and 'control' and argue why it is detrimental to continue using them in the context of TB. We propose that 'defaulter' be replaced with 'person lost to follow-up'; that 'TB suspect' be replaced by 'person with presumptive TB' or 'person to be evaluated for TB'; and that the term 'control' be replaced with 'prevention and care' or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm.
Language: en
ISSN: 1815-7920
Rights: Archived with thanks to The International Journal of Tuberculosis and Lung Disease : the official journal of the International Union against Tuberculosis and Lung Disease
Appears in topics: TB

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