Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients?

Hdl Handle:
http://hdl.handle.net/10144/227595
Title:
Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients?
Authors:
Zachariah, R; Harries, A D; Srinath, S; Ram, S; Viney, K; Singogo, E; Lal, P; Mendoza-Ticona, A; Sreenivas, A; Aung, N W; Sharath, B N; Kanyerere, H; van Soelen, N; Kirui, N; Ali, E; Hinderaker, S G; Bissell, K; Enarson, D A; Edginton, M E
Journal:
International Journal of Tuberculosis and Lung Disease
Abstract:
The words 'defaulter', 'suspect' and 'control' have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side-that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words 'defaulter', 'suspect' and 'control' and argue why it is detrimental to continue using them in the context of TB. We propose that 'defaulter' be replaced with 'person lost to follow-up'; that 'TB suspect' be replaced by 'person with presumptive TB' or 'person to be evaluated for TB'; and that the term 'control' be replaced with 'prevention and care' or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm.
Affiliation:
Medical Department, Médecins Sans Frontières, Operational Centre Brussels, MSF-Luxembourg, Luxembourg.
Issue Date:
Jun-2012
URI:
http://hdl.handle.net/10144/227595
DOI:
10.5588/ijtld.11.0635
PubMed ID:
22613683
Language:
en
ISSN:
1815-7920
Appears in Collections:
TB

Full metadata record

DC FieldValue Language
dc.contributor.authorZachariah, Ren_GB
dc.contributor.authorHarries, A Den_GB
dc.contributor.authorSrinath, Sen_GB
dc.contributor.authorRam, Sen_GB
dc.contributor.authorViney, Ken_GB
dc.contributor.authorSingogo, Een_GB
dc.contributor.authorLal, Pen_GB
dc.contributor.authorMendoza-Ticona, Aen_GB
dc.contributor.authorSreenivas, Aen_GB
dc.contributor.authorAung, N Wen_GB
dc.contributor.authorSharath, B Nen_GB
dc.contributor.authorKanyerere, Hen_GB
dc.contributor.authorvan Soelen, Nen_GB
dc.contributor.authorKirui, Nen_GB
dc.contributor.authorAli, Een_GB
dc.contributor.authorHinderaker, S Gen_GB
dc.contributor.authorBissell, Ken_GB
dc.contributor.authorEnarson, D Aen_GB
dc.contributor.authorEdginton, M Een_GB
dc.date.accessioned2012-06-06T09:51:53Z-
dc.date.available2012-06-06T09:51:53Z-
dc.date.issued2012-06-
dc.identifier.citationLanguage in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? 2012, 16 (6):714-7 Int. J. Tuberc. Lung Dis.en_GB
dc.identifier.issn1815-7920-
dc.identifier.pmid22613683-
dc.identifier.doi10.5588/ijtld.11.0635-
dc.identifier.urihttp://hdl.handle.net/10144/227595-
dc.description.abstractThe words 'defaulter', 'suspect' and 'control' have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side-that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words 'defaulter', 'suspect' and 'control' and argue why it is detrimental to continue using them in the context of TB. We propose that 'defaulter' be replaced with 'person lost to follow-up'; that 'TB suspect' be replaced by 'person with presumptive TB' or 'person to be evaluated for TB'; and that the term 'control' be replaced with 'prevention and care' or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm.en_GB
dc.language.isoenen
dc.rightsArchived with thanks to The International Journal of Tuberculosis and Lung Disease : the official journal of the International Union against Tuberculosis and Lung Diseaseen_GB
dc.titleLanguage in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients?en
dc.contributor.departmentMedical Department, Médecins Sans Frontières, Operational Centre Brussels, MSF-Luxembourg, Luxembourg.en_GB
dc.identifier.journalInternational Journal of Tuberculosis and Lung Diseaseen_GB

Related articles on PubMed

All Items in MSF are protected by copyright, with all rights reserved, unless otherwise indicated.