Research Ethics and International Epidemic Response: The Case of Ebola and Marburg Hemmorrhagic Fevers

Hdl Handle:
http://hdl.handle.net/10144/77453
Title:
Research Ethics and International Epidemic Response: The Case of Ebola and Marburg Hemmorrhagic Fevers
Authors:
Calain, P; Fiore, N; Poncin, M; Hurst, S
Journal:
Public Health Ethics
Abstract:
Outbreaks of filovirus (Ebola and Marburg) hemorrhagic fevers in Africa are typically the theater of rescue activities involving international experts and agencies tasked with reinforcing national authorities in clinical management, biological diagnosis, sanitation, public health surveillance and coordination. These outbreaks can be seen to be as a paradigm for ethical issues posed by by epidemic emergencies, through the convergence of such themes as: isolation and quarantine, privacy and confidentiality and the interpretation of ethical norms across different ethnocultural settings. With an emphasis on the boundaries between public health investigations and research, this article reviews specific challenges, past practices and current normative documents relevant to the application of ethical standards in the course of outbreaks of filovirus hemorrhagic fevers. Aside from the commonly identified issues of informed consent, and institutional review process, we argue for more clarify over the specification of which communities are expected to share benefits, and we advocate for the use of collective definitions of duty to care and standard of care. We propose new elaborations around existing normative instruments, and we suggest some pathways toward more comprehensive approaches to the ethics of research in outbreak situations.
Affiliation:
Medecins Sans Frontieres
Publisher:
Oxford University Press
Issue Date:
1-Aug-2009
URI:
http://hdl.handle.net/10144/77453
Additional Links:
http://phe.oxfordjournals.org/cgi/reprint/phn037?ijkey=9pUi2t6Qubnqf2u&keytype=ref
Language:
en
Description:
To access this article, click on "Additional Links".
Appears in Collections:
Ethics

Full metadata record

DC FieldValue Language
dc.contributor.authorCalain, P-
dc.contributor.authorFiore, N-
dc.contributor.authorPoncin, M-
dc.contributor.authorHurst, S-
dc.date.accessioned2009-08-14T14:43:31Z-
dc.date.available2009-08-14T14:43:31Z-
dc.date.issued2009-08-01-
dc.identifier.urihttp://hdl.handle.net/10144/77453-
dc.descriptionTo access this article, click on "Additional Links".en
dc.description.abstractOutbreaks of filovirus (Ebola and Marburg) hemorrhagic fevers in Africa are typically the theater of rescue activities involving international experts and agencies tasked with reinforcing national authorities in clinical management, biological diagnosis, sanitation, public health surveillance and coordination. These outbreaks can be seen to be as a paradigm for ethical issues posed by by epidemic emergencies, through the convergence of such themes as: isolation and quarantine, privacy and confidentiality and the interpretation of ethical norms across different ethnocultural settings. With an emphasis on the boundaries between public health investigations and research, this article reviews specific challenges, past practices and current normative documents relevant to the application of ethical standards in the course of outbreaks of filovirus hemorrhagic fevers. Aside from the commonly identified issues of informed consent, and institutional review process, we argue for more clarify over the specification of which communities are expected to share benefits, and we advocate for the use of collective definitions of duty to care and standard of care. We propose new elaborations around existing normative instruments, and we suggest some pathways toward more comprehensive approaches to the ethics of research in outbreak situations.en
dc.language.isoenen
dc.publisherOxford University Pressen
dc.relation.urlhttp://phe.oxfordjournals.org/cgi/reprint/phn037?ijkey=9pUi2t6Qubnqf2u&keytype=refen
dc.rightsArchived on this site with kind permission from Oxford University Press.en
dc.titleResearch Ethics and International Epidemic Response: The Case of Ebola and Marburg Hemmorrhagic Feversen
dc.contributor.departmentMedecins Sans Frontieresen
dc.identifier.journalPublic Health Ethicsen
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