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    Jan 20, 2021
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    Are Expert Patients an Untapped Resource for ART Provision in Sub-Saharan Africa?

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    Authors
    Decroo, Tom
    Van Damme, Wim
    Kegels, Guy
    Remartinez, Daniel
    Rasschaert, Freya
    Affiliation
    Médecins Sans Frontières, Avenue Eduardo Mondlane 38, Tete, Mozambique.
    Issue Date
    2012-04
    
    Metadata
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    Journal
    AIDS Research and Treatment
    Abstract
    Since the introduction of antiretroviral treatment, HIV/AIDS can be framed as a chronic lifelong condition, requiring lifelong adherence to medication. Reinforcement of self-management through information, acquisition of problem solving skills, motivation, and peer support is expected to allow PLWHA to become involved as expert patients in the care management and to decrease the dependency on scarce skilled medical staff. We developed a conceptual framework to analyse how PLWHA can become expert patients and performed a literature review on involvement of PLWHA as expert patients in ART provision in Sub-Saharan Africa. This paper revealed two published examples: one on trained PLWHA in Kenya and another on self-formed peer groups in Mozambique. Both programs fit the concept of the expert patient and describe how community-embedded ART programs can be effective and improve the accessibility and affordability of ART. Using their day-to-day experience of living with HIV, expert patients are able to provide better fitting solutions to practical and psychosocial barriers to adherence. There is a need for careful design of models in which expert patients are involved in essential care functions, capacitated, and empowered to manage their condition and support fellow peers, as an untapped resource to control HIV/AIDS.
    URI
    http://hdl.handle.net/10144/227596
    DOI
    10.1155/2012/749718
    PubMed ID
    22577527
    Language
    en
    ISSN
    2090-1259
    ae974a485f413a2113503eed53cd6c53
    10.1155/2012/749718
    Scopus Count
    Collections
    HIV/AIDS

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