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    Apr 18, 2021
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    Research Ethics and International Epidemic Response: The Case of Ebola and Marburg Hemmorrhagic Fevers

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    Authors
    Calain, P
    Fiore, N
    Poncin, M
    Hurst, S
    Affiliation
    Medecins Sans Frontieres
    Issue Date
    2009-08-01
    
    Metadata
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    Journal
    Public Health Ethics
    Abstract
    Outbreaks of filovirus (Ebola and Marburg) hemorrhagic fevers in Africa are typically the theater of rescue activities involving international experts and agencies tasked with reinforcing national authorities in clinical management, biological diagnosis, sanitation, public health surveillance and coordination. These outbreaks can be seen to be as a paradigm for ethical issues posed by by epidemic emergencies, through the convergence of such themes as: isolation and quarantine, privacy and confidentiality and the interpretation of ethical norms across different ethnocultural settings. With an emphasis on the boundaries between public health investigations and research, this article reviews specific challenges, past practices and current normative documents relevant to the application of ethical standards in the course of outbreaks of filovirus hemorrhagic fevers. Aside from the commonly identified issues of informed consent, and institutional review process, we argue for more clarify over the specification of which communities are expected to share benefits, and we advocate for the use of collective definitions of duty to care and standard of care. We propose new elaborations around existing normative instruments, and we suggest some pathways toward more comprehensive approaches to the ethics of research in outbreak situations.
    Publisher
    Oxford University Press
    URI
    http://hdl.handle.net/10144/77453
    Additional Links
    http://phe.oxfordjournals.org/cgi/reprint/phn037?ijkey=9pUi2t6Qubnqf2u&keytype=ref
    Language
    en
    Description
    To access this article, click on "Additional Links".
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